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Links

US Moebius Syndrome Foundation

This site is the founder site for Moebius Syndrome and has a wide range of information and articles.

www.moebiussyndrome.com

 

Moebius Syndrome Support UK

This is the UK website; it was crested for a positive Supportive Network for parents, families and professionals.

www.moebiussyndrome.co.uk

 

Moebius Research Trust

The Trust was set up to find out what causes Moebius Syndrome. In order to do that, they need to find 100 people with Moebius who are willing to assist with DNA testing, PLUS, they need to raise £250,000 to fund the research.

www.moebiusresearchtrust.org

 

Changing Faces

UK based charity giving support and information to people with facial disfigurement and other facial differences and their families, and the professionals.

www.changingfaces.org.uk

 

Contact a Family

For families with disabled children we offer information on specific conditions and rare disorders.

www.cafamily.org.uk

 

Kids with Facial Paralysis

Kids with facial paralysis is an Australian web site with a wide range of information on facial paralysis and other related conditions, as well as a very active forum which has many members not only in Australia but also in other countries.

http://groups.msn.com/kidswithfacialparalysis